It’s been several weeks since I’ve posted an update and so much has happened; none of it very good. The last update I had, I posted about my husband undergoing a heart catheterization and finding he has artery spasms and blockages (not bad enough for stents, thank God), which is one of the reasons why we have decided to go totally organic after the holidays.
Shortly before my husband’s procedure, I was diagnosed with a herniated disc in the c5-6 level (owie!) and Chiari 1 Malformation (pronounced Kee-AH-Ree), which is a condition which brain tissue extends into your spinal canal. Apparently, I have had this my whole life, and none of my doctors or radiologist have thought to inform me of it until recently. After reading up on the condition (my symptoms are making sense now…apparently it is one of the most misdiagnosed disorders out there, and I know that first hand now) and finding out it can only be diagnosed through MRI, I went and got a disc of all my MRIs of the brain from present back to 2002, when I first started having them due to a strong family history of brain aneurysms in my family (at the urging of my aunt’s doctor’s for those of us that suffer from migraines and headaches). Sure enough, the Chiari can be seen on the 2002 MRIs. And I was never told. This is a serious condition, and since my symptoms have gotten so much worse in the past couple years, especially the past year, I could face brain surgery sometime in the near future. I’ve had that to worry and chew on since October 10th.
Nearly two weeks ago at my first appointment with my new neurologist, after finding out about my family history of aneurysms (my brother had one that he had coiled, my aunt had one rupture, had brain surgery and has several with stents/coils, my uncle died from a ruptured aneurysm) and after an eye exam, my doctor sent me downstairs for an MRA and back to his office to await the results, where we found out that I do, in fact, have a brain aneurysm behind my left eye (yes, he apparently saw that during the eye exam).
I will be spending the weeks before Christmas, in between shopping (thank God I can do some of that online), in and out of the hospital, getting this aneurysm taken care of. The first appointment is this Wednesday when I go in for the cerebral angiogram, where they basically map out my brain and see if I have any other aneurysms.I am assuming I will be getting it coiled a week or two after my angiogram. Not gonna lie, all of this kinda freaks me out. Even the angiogram.
In between all of this, I am having sleep studies, because my doctor thinks I have sleep apnea (which is also an associated condition of Chiari), my twelve year old is now seeing a pediatric GI and nutritionist and I won’t even go into the problems my son has been having. I’ll just say that they are not medical, they are behavioral (which is not new, it’s been escalating for several years).
On November 4th, we were also informed that my stepson’s cancer was incurable; that he needed a miracle. To date, Tyler has went through a total of five rounds of chemotherapy and a tandem stem cell transplant with high dose chemotherapy; all have failed. Dr. Einhorn put him on Etoposide, which is a chemo pill that is meant to maintain his HCG numbers (this is his main tumor markers), to keep them low for as long as possible. We are praying and believing he will get his miracle.
To say that my family is going through some hard times is an understatement. We could really use your prayers. Please pray for my family’s health, and please pray for my stepson, that he receives a miracle healing. This is what I want for Christmas: my family and I to be healthy. I want a Christmas Miracle.